References 2019-06-04T11:05:47+01:00

We have an active programme of research and evaluation which aims to explore how people can live well with the impact of cancer. Here are some of our selected publications.

  • WEAHSN  Evaluation Case Study (2018): Service Evaluation of the Wellness Package: a 12 month longitudinal retrospective.
  • Ejbye J, et al. Making it Happen. Practical learning tips from the five Realising the Value local partner sites. Nesta, November 2016.
  • Jolliffe R, Seers H, Durrant J, Sweetnam H. The long-term impact of the Living Well course. Results from a 5 year follow up. Penny Brohn UK, 2016.
  • Jolliffe R, Seers H, Durrant J, Sweetnam H, Connors M. Service evaluation of the Wellness Package: a 12 month longitudinal retrospective. Penny Brohn UK, 2016. DOI: 10.13140/RG.2.1.3926.2320.(FULL REPORT)
  • Jolliffe R, Seers H, Durrant J, Sweetnam H. Support for supporters. The impact of Penny Brohn UK’s Living Well course for supporters of people with cancer. Penny Brohn UK, 2016.
  • Jolliffe R, Seers H, Durrant J, Sweetnam H, Connors M. Service evaluation of the Wellness Package: a 12 month longitudinal retrospective. Penny Brohn UK, 2016. (SUMMARY)
  • Polley M, Jolliffe R, Jackson S, Boxell E, Seers H. Penny Brohn Cancer Care: Service Evaluation of ‘Living Well with the Impact of Cancer’ Courses, Penny Brohn Cancer Care, University of Westminster, October 2013.
  • Seers HE. National Cancer Survivorship Initiative, Active and Advanced Workstream, Living Well Subgroup Scoping Exercise: “Living Well with, and Beyond Cancer”, Macmillan Cancer Support April, 2010.
  • Butler E, Seers HE, Lockyer L, Benjamin C. Getting the Best Nutritional Advice with Cancer: Findings from a UK survey on the nutritional advice given to people with a cancer diagnosis, 2006. Bristol Cancer Help Centre, UK
  • Seers H, Lorenc A, Kasimati K, Dack C, Churchward S, Durrant J, MacLennan S. Exploring the impact of the Penny Brohn UK Living Well Course on cancer survivors’ employment and active community role status. Centre for Health and Clinical Research (CHCR) Showcase Conference 2019, Bristol, UK. 5th April 2019 (poster presentation).
  • Seers H, Johnson R, Durrant J, Churchward S, Naidoo M, Zollman C, Griffiths M, Ben-Ayre E, Polley M. Impact of Penny Brohn UK’s Living Well course on informal caregivers of people with cancer. British Psychosocial Oncology Society, Chester, UK. 28th Feb-1st March 2019 (poster presentation).
  • Durrant J, French H, Naidoo M, Churchward S, Griffiths M, Seers H. Impact of psychological counselling services at Penny Brohn UK. National Cancer Research Institute, Glasgow, UK. 4-6 November 2018 (poster presentation).
  • Seers H, Griffiths M, Churchward S, Samuel R, Naidoo M, French H, Jolliffe R, Durrant J. Evaluation of Penny Brohn UK’s national programme of ‘Living Well With and Beyond Cancer’ services, National Cancer Research Institute Conference, Glasgow, 4-6 November 2018 (poster presentation).
  • Samuel R, Zollman C , Naidoo M, Churchward S, French H, Macdonald S, Durrant J, Griffiths M, Polley M, Smith P, Seers H. Investigating the experiences of post-traumatic growth in individuals with metastatic cancer. 15th International Conference of the Society for Integrative Oncology (SIO). Arizona, USA. October 2018 (poster presentation).
  • Seers H, Kasimati K, Jolliffe R, Griffiths M, Coulson J. Exploration of the impact of the Penny Brohn UK Living Well course on cancer survivors’ employment and community role status. BPOS oral presentations. Southampton UK. March 2018. Psycho-Oncology, 27: 3-8. Publishes online in Wiley Online Library (wileyonlinelibrary.com). DOI:10.1002/pon.4638
  • Seers H. Evaluation at Penny Brohn UK: From internal service evaluation to external policy influence via NHS England’s Realising the Value project. Centre for Health and Clinical Research ‘Health Research for Impact’ conference 19th January, 2017, EEC, Frenchay, Bristol (oral presentation).
  • Seers H, Jolliffe R, Coulson J, Thompson J. Realising the Value of self-management education at Penny Brohn UK. Self Care Conference, London, UK. September 2017.
  • Jolliffe R, Cargill J, Polley M, French H, Hardman F, Seers H, Baker L. Development of a two day wellbeing course for supporters of teenagers and young adults (TYA) with cancer. 14th International Conference of the Society for Integrative Oncology (SIO). Chicago, USA. November 2017 (poster presentation).
  • Jolliffe R, Cargill J, Polley M, French H, Hardman F, Seers H, Baker L. Development of a two day wellbeing course for supporters of teenagers and young adults (TYA) with cancer. TYAC BRIGHTLIGHT conference, Leeds, UK. July 2017. (Poster presentation – winner of best poster award)
  • Seers H, Jolliffe R. The long-term impact of a self-management course for people affected by cancer: results from a five year follow-up. British Psychosocial Oncology Society, Oxford, UK. March 2017. (Poster presentation). Psycho-Oncology 26 (Suppl. 2): 10-28 (2017). Published online in Wiley Online Library (wileyonlinelibrary.com). DOI:1/pon. 4374.
  • Seers H, Greatorex C, Jolliffe R. Long-term support for people with cancer: the impact of a 2 day self-management course and follow-up support. UK Oncology Nursing Society, Brighton, UK. November 2016. (Poster presentation)
  • Zollman C, Polley M, Seers H, Jolliffe R. Using the Patient Activation Measure to evaluate a self-management course for people with cancer. 13th International Conference of the Society for Integrative Oncology (SIO). Miami Florida, USA. November 2016. (Poster presentation).
  • Hardman FR, Baker LV, Seers H, Jolliffe R. A pilot study to investigate the effectiveness of a two day wellbeing course for the supporters of teenagers and young adults (TYAs) with cancer. Teenage Cancer Trust 9th International Conference and 1st Global AYA Cancer Congress, Edinburgh, UK. November 2016. (Poster presentation)
  • Seers H, Jolliffe R, Durrant J. A self-management course improves Patient Activation in people with cancer. Christie School of Oncology – Changing Prospects for Cancer 2016, March 2016. DOI: 10.13140/RG.2.1.2395.8163. (Poster presentation)
  • Collaco N, Jolliffe R, Seers H, Jackson S, Polley M. Exploration of the experiences and concerns of supporters of people with cancer attending Penny Brohn Cancer Care. European Journal of Integrative Medicine, 2015; 7(6): 687.
  • Polley M, Collaco N, Jolliffe R, Seers H. Developing MYCaW to capture supporters’/carers’ concerns to aid integrative consultations. 12th International Conference of the Society for Integrative Oncology (SIO), Boston Massachusetts, USA. November 2015. (Oral presentation)
  • Jolliffe R, Seers H, Jackson S, Caro E, Weeks L, Polley M. Validation of Measure Yourself Concerns and Wellbeing (MYCaW) Patient Reported Outcome Measure. National Cancer Research Institute, Liverpool, UK. November 2015. (Poster presentation)
  • Polley M, Jolliffe R, Boxell E, Jackson S, Zollman C, Seers H. ‘Living Well with the Impact of Cancer’ course. Longitudinal evaluation of a psycho-educational course for people with cancer and their supporters. National Cancer Research Institute, Liverpool, UK. November 2015. (Poster presentation)
  • Thomas R, Sikora K, McPartlan P, Seers H, Vogel K, Jolliffe R. Holistic needs directed lifestyle advice and complementary therapies during complex radiotherapy – Evaluation of the Cancer Partners UK (CPUK) Living Well programme. Support Care Cancer, 2015; 23(1): S1-S388.
  • Collaco N, Jolliffe R, Seers H, Jackson S, Polley M. Exploration of the experiences and concerns of supporters of people with cancer attending Penny Brohn Cancer Care. CAMSTRAND, London South Bank University, June 2015. (Poster presentation)
  • Polley MJ, Jolliffe R, Jackson S, Caro E, Weeks L, Seers H. Validation of the Measure Yourself Concerns and Wellbeing patient reported outcome measure. 11th International Conference of the Society for Integrative Oncology (SIO), Houston Texas, USA. October 2014. (Oral presentation)
  • Polley M, Jolliffe R, Boxell E, Jackson S, Seers H. Longitudinal service evaluation of the ‘Living Well’ cancer support course to identify the impact on, and needs of people living with and beyond cancer. 10th International Conference of the Society for Integrative Oncology (SIO), Vancouver, Canada. October 2013. (Oral presentation)
  • Polley M. Evaluating the role of the supporter. National Conference of Cancer Self Help Groups, July 2013. (Oral presentation)
  • Jolliffe R, Collaco N, Seers H, Farrell C, Sawkins M, Polley M. Development of Measure Yourself Concerns and Wellbeing for informal carers of people with cancer – a multicentre study. Journal of Supportive Care in Cancer, 2019;27(5):1901-1909. doi: 10.1007/s00520-018-4422-8.
  • Jolliffe R, Durrant J, Seers H, Churchward S, Griffiths M, Naidoo M, Ben-Arye E, Polley M, Zollman C. Impact of Penny Brohn UK’s Living Well Course on informal caregivers of people with cancer. Journal of Alternative and Complementary Medicine, 2018; 24(9-10): 974-980
  • Zollman C, Walther A, Seers H, Jolliffe R, Polley MJ. Integrative whole-person oncology care in the UK. JNCI Monographs, 2017; 52. doi.org/10.1093/jncimonographs/lgx002.
  • Thomas R, Yang D, Zollman C, Williams M, Phytochemicals in Cancer Management. Curr Res Complement Altern Med, 2017: CRCAM-105. DOI:10.29011/CRCAM-105/100005.
  • Zollman C. Resilience and realistic hope for women with breast cancer. I’m a person with a life, not a patient with a prognosis. Journal of Holistic Healthcare, 2017; 14(2).
  • Zollman C, Walther A, Seers H, Jolliffe R, Polley M. Integrative Whole Person Oncology Care in the UK. J Natl Inst Monogr, 2017 (52): Igx002. DOI: 10.1093/jcnimonographs/Igx002.
  • Polley M, Jolliffe R, Boxell E, Zollman C, Jackson S, Seers H. Using a whole person approach to support people with cancer: a longitudinal, mixed-methods service evaluation. Integrative Cancer Therapies, 2016; 15(4): 435-445.
  • Jolliffe R, Polley M, Jackson S, Caro E, Weeks L, Seers H. The responsiveness, content and convergent validity of the Measure Yourself Concerns and Wellbeing (MYCaW) patient reported outcome measure. Integrative Cancer Therapies, 2015; 14(1): 26-34.
  • Seers HE, Gale N, Paterson C, Cooke HJ, Tuffrey V, Polley MJ. Individualised and complex experiences of integrative cancer support care: combining qualitative and quantitative data. Supportive Care in Cancer, 2009; 17(9): 1159-67.
  • Breckons M, Jones R, Morris J, Richardson J. “What do evaluation instruments tell us about the quality of complementary medicine information on the internet?”. J Med Internet Res, 2008; 10(1).
  • Polley MJ, Seers HE, Cooke HJ, Hoffman C, Paterson C. How to summarise and report written qualitative data from patients: A method for use in cancer support care. Supportive Care in Cancer, 2007; 15(8): 963-71.
  • Paterson C, Thomas K, Manasse A, Cooke H, Peace G. Measure Yourself Concerns and Wellbeing (MYCaW): an individualised questionnaire for evaluating outcomes in cancer support care that includes complementary therapies. Complement Ther Med, 2007; 15(1): 38-45.
  • Seers HE. CAM information frontiers: role of a research officer at the Bristol Cancer Help Centre.  Focus on Alternative and Complementary Therapies, 2005; 10: 48.
  • Turton P. Education for integration–a view from the bridge!! Complement Ther Nurs Midwifery, 2003; 9(1): 20-2.
  • Burns SJ, Harbuz MS, Hucklebridge F, Bunt L. A pilot study into the therapeutic effects of music therapy at a cancer help center. Altern Ther Health Med, 2001; 7(1): 48-56.
  • Turton P, Cooke H. Meeting the needs of people with cancer for support and self-management. Complement Ther Nurs Midwifery, 2000; 6(3): 130-7.

“I have been impressed by the consistent high standards of research and dedication to a patient centred approach, with an ability to develop and validate new research tools to measure outcome.”
– Dr Charlotte Paterson, University of Bristol, Honorary Research Fellow

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