Privacy Policy

>Privacy Policy
Privacy Policy 2017-09-21T12:42:28+00:00


Penny Brohn UK promises to respect any personal data you share with us, or that we get from other organisations and keep it safe.  We aim to be clear when we collect your data and not do anything you wouldn’t reasonably expect.

Developing a better understanding of our supporters through their personal data allows us to make better decisions, fundraise more efficiently and, ultimately, helps us to reach more people living with cancer.

We began communicating a new communication process to supporters in 2016.  By May 2018 we will be operating an ‘opt-in only’ communication policy. This means that we will only send marketing communications to those that have explicitly stated that they are happy for us to do so via their preferred channel(s) (email, SMS, phone or post).

Our marketing communications include information about our latest courses, campaigns and self- management education resources. If you would like to receive such communications but have not opted in please contact us on 0303 3000 118 or  If you would like to opt-in online, please visit:

For the purpose of the Data Protection Act 1998 (the “Act”), the data controller is Penny Brohn UK of Chapel Pill Lane, Pill, Bristol, BS20 0HH.

Information we may collect from you:

Penny Brohn UK may collect and process the following data about you:

  • Information that you provide by filling in forms on the website This includes information provided at the time of subscribing to Penny Brohn UK newsletters, e-bulletins or in relation to courses and services provided by Penny Brohn UK. Penny Brohn UK may also ask you for information if you report a problem with the website;
  • Any correspondence you send to Penny Brohn UK;
  • Details of any donations – direct or through a third party e.g. HMRC, JustGiving or similar – or job applications that you make;
  • Penny Brohn UK may also ask you to complete surveys used for research purposes, although you do not have to respond to them;
  • Details of your visits to this website and the resources that you access.

Any third party donations made will also be subject to Privacy, Data Protection and Terms & Conditions of the website through which the donation was made.

Social Media

Depending on your settings or the privacy policies for social media and messaging services like Facebook, WhatsApp or Twitter, you might give us permission to access information from those accounts or services. In the circumstance that you contact Penny Brohn UK on Facebook, Twitter, Instagram, LinkedIn or any other social media site. Users will not be contacted by Penny Brohn UK outside of the specific social network without explicit permission from that user.

Information on those who have opted-in may also be used to create targeted audiences – specific and lookalike – for advertising online through Facebook and similar networks. Under no circumstances will this information be shared publically.

Publically available information

This may include information found in places such as Companies House and information that has been published in articles/ newspapers or published in an online public forum.

Any available information on demographics and activity of Penny Brohn UK website users collected through Facebook Insights, Twitter Analytics, Google Analytics and any other data collecting tool may be used for audience profiling and development of services and marketing.

IP addresses

Penny Brohn UK may collect information about your computer, including where available your IP address, operating system and browser type, for system administration. This is statistical data about Penny Brohn UK users’ browsing actions and patterns, and does not identify any individual.


For the same reason, Penny Brohn UK may obtain information about your general internet usage by using a cookie file which is stored on your browser or the hard drive of your computer.

We use cookies to ensure that we give you the best experience on our website. By continuing to use this site you consent to the use of cookies on your device as described in our cookies policy.

Cookies are small text files placed on your computer by websites you visit. They are widely used to make websites work more efficiently for visitors, and to provide information to the owners of the site. Some of the cookies we use are essential in order for parts of the website to operate.

In your web browser you can control which types of cookies you allow. You can turn cookies on or off using your browser’s settings. You can also delete cookies and clear your browser’s cache (history).

Notice about Cookies

The law relating to cookies changed on 26 May 2011. The new rules require that cookies can only be placed on machines where the user has given their consent. We are working toward the best methods for obtaining your consent, in line with the government’s proposed phased approach to these changes. In the meantime, you can control cookies by setting your browser not to receive cookies.

You can read more about cookies in our separate Cookies Policy.

Where we store your personal data

All information you provide to Penny Brohn UK is stored on its secure servers. Any payment transactions will be encrypted using SSL technology. Each of our payment platforms have validated compliance with the Payment Card Industry Data Security Standard (PCI DSS) and the Payment Application Data Security Standard (PA DSS). Please see Blackbaud website for donations and Shopify website for online shop purchases. For purely technical and operational reasons, your user data may from time to time be stored on our behalf on servers based overseas. All contractors operating such storage on our behalf will be identifiable as “Safe Harbor” compliant. By submitting your personal data, you agree to this transfer, storing or processing. Penny Brohn UK will take all steps reasonably necessary to ensure that your data is treated securely and in accordance with this privacy policy.

Unfortunately, the transmission of information via the internet is not completely secure. Although Penny Brohn UK will do its best to protect your personal data, it cannot guarantee the security of your data transmitted to the website; any transmission is at your own risk. Once Penny Brohn UK have received your information, it will use strict procedures and security features to try to prevent unauthorised access.

In the unlikely circumstance that Penny Brohn UK is required to disclose personal details to the police, regulatory bodies or legal advisors, i.e. when fraudulent or criminal activity has taken place, your agreement to our Terms & Conditions surrounding opting-in grant us this permission.

Use of information held

We process your personal data in accordance with the Data Protection Act 1998 (the DPA).

Penny Brohn UK uses information held about you in the following ways:

The type and quantity of information we collect and how we use it depends on why you are providing it.


If you support us, for example make a donation, volunteer, register to fundraise, sign up for an event or buy something from our shop, we will usually collect:

  • Your name
  • Your contact details
  • Your date of birth
  • Your bank or credit card details.

Where it is appropriate we may also ask for:

  • Information relating to your health (for example if you are taking part in a high risk event)
  • Why you have decided to donate to us. We will never make this question mandatory, and only want to know the answer if you are comfortable telling us.

We will mainly use your data to:

  • Provide you with the services, products or information you asked for
  • Administer your donation or support your fundraising, including processing gift aid
  • Keep a record of your relationship with us
  • Ensure we know how you prefer to be contacted
  • Understand how we can improve our services, products or information.

If you enter your details onto one of our online forms, and you don’t ‘send’ or ‘submit’ the form, we may contact you to see if we can help with any problems you may be experiencing with the form or our websites.

We may also use your personal information to detect and reduce fraud and credit risk.

Building profiles of supporters and targeting communications

We use profiling and screening techniques to ensure communications are relevant and timely, and to provide an improved experience for our supporters.  Profiling also allows us to target our resources effectively, which donors consistently tell us is a key priority for them.  We do this because it allows us to understand the background of the people who support us and helps us to make appropriate requests to supporters who may be able and willing to give more than they already do. Importantly, it enables us to raise more funds, sooner, and more cost-effectively, than we otherwise would.

When building a profile we may analyse geographic, demographic and other information relating to you in order to better understand your interests and preferences in order to contact you with the most relevant communications.  In doing this, we may use additional information from third party sources when it is available.  Such information is compiled using publicly available data about you, for example addresses, listed Directorships or typical earnings in a given area.

Direct Marketing

With your consent, we will contact you to let you know about the progress we are making and to ask for donations or other support. Occassionally, we may include information from partner organisations or organisations who support us in these communications. We make it easy for you to tell us how you want us to communicate, in a way that suits you. If you don’t want to hear from us, that’s fine. Just let us know when you provide your data or contact us on 0300 3000 118 or email

We do not sell or share personal details to third parties for the purposes of marketing.  But, if we run an event in partnership with another named organisation your details may need to be shared. We will be very clear what will happen to your data when you register.

Sharing your story

Some people choose to tell us about their experiences with cancer to help further our work.  They may take on a role as a Charity Champion, attend our patient focused events or sit on our committees.  This may include them sharing sensitive information related to their health and family life in addition to their biographical and contact information.

We use some of the information provided, including gender, ethnicity or the type of cancer people have experience with, to target opportunities to get involved.  We will also monitor the types of people who are involved to ensure that the views we hear are representative of all people affected by cancer.

If we have the explicit and informed consent of the individuals, or their parent or guardian if they are under 18, this information may be made public by us at events, in materials promoting our campaigning and fundraising work, or in documents such as our annual report.

Support for individuals affected by Cancer

We run services to provide support to individuals affected by cancer, and collect personal data in order to provide those services.

Penny Brohn UK will only share your details in exceptional circumstances, for example where abuse is reported, or someone reports serious self-harm or a serious intention of harming someone else.

We may also collect and retain your information if you send feedback about our services or make a complaint.

Further ways in which we might use your information are:

  • to keep you informed and obtain your views of our activities; to achieve the charitable objectives of Penny Brohn UK;
  • to ensure that content from this website is presented in the most effective manner for you and for your computer;
  • to process and respond to requests, enquiries and complaints received from you; to provide services requested by you and any related communications;
  • to provide you with information, products or services that you request from Penny Brohn UK or which Penny Brohn UK feel may interest you, where you have consented to be contacted for such purposes;
  • creation of targeted audiences for online advertising purposes
  • transfer to HM Revenue and Customs in respect of any Gift Aid claims;
  • audit purposes;
  • to detect or prevent fraud and credit risk; to transfer to service suppliers who undertake processing on our behalf, at our direction or otherwise to transfer any personal data to any other regulator or government body as required; to communicate with you by email or other form of electronic communication;
  • and statutory and regulatory compliance.

Your rights

The Act gives you the right to access information held about you. Your right of access can be exercised in accordance with the Act. Any access request may be subject to a fee of £10.00 to meet Penny Brohn UK costs in providing details of the information held about you.

Please note that any external third party websites, which Penny Brohn UK may provide a link to will have their own privacy policies and that we do not accept any responsibility or liability for these policies. Please check these policies before you submit any personal data to these websites.

Any changes made to our privacy policy in the future will be posted on this page and, where appropriate, notified to you by e-mail.

Questions, comments and requests regarding this privacy policy are welcomed and should be addressed to “Penny Brohn UK, Chapel Pill Lane, Pill, Bristol, BS20 0HH” or and for further information see the Information Commissioner’s guidance here